A four-year-old girl is fighting for her life in Fresno as she’s facing a rare and deadly brain tumor.
Little Crimson Barnett and her family were part of our Renew-A-Ride campaign to win a van. However, before the contest was over, they were already gifted one.
But now, her story has gone global, and her family has received cards from Russia, Isreal and Germany.
Her illness is a parent’s worst nightmare. Watching helplessly as a deadly cancer, that can strike at any moment, takes over your child, and there’s no stopping it.
However, there’s no stopping Crimson. Her mind, sharp, her smile everlasting, and with her fifth birthday just eight days away, her wish, maybe her final one, has been granted.
Her family has decided not to do any radiation treatment, hoping for quality of life with fun trips.
The Make-A-Wish Foundation granted her trip to Disneyland, and her parents believe it may be her last trip.
Crimson only has a few more months left, the family says.
She likes to hide under her covers just like any other kid, but she’s hiding for a different reason, she’s fully aware that her life will tragically be cut short.
Larissa Barnett, Crimson’s mom, says, “It’s been a whirlwind of emotions, to find this out, and it’s not going to get better.”
Barnett just had her third baby girl, but her eldest, Crimson, has been trying to beat the odds since she was six-months-old when she was first diagnosed with Autism.
Then came Nov. 26 of last year, two hours after dropping Crimson off at school, the phone rang.
Ron Huffman, Crimson’s grandpa, called saying “that her whole left side went down, that she couldn’t move her whole left side of her body.”
It didn’t take long for doctors to discover Crimson developed a rare fatal brain tumor, called Diffuse Intrinsic Pontine Glioma (DIPG) .
Less than 10 percent of kids diagnosed survive more than two years, and Crimson’s motorskills already failing.
“She hides, spends most of her time in our room, she doesn’t like pictures or videos taken of her, she hides her face,” her mother says.
Crimson and her family plan to go to Disneyland for the first time on March 4.
But if you would like to help in Crimson’s quest for fun places, you can donate on her GoFundMe page.